Saturday, June 4, 2011
Well the summer season has begun and so many things to do. This past week I was able to accept a check for Augie's Quest/MDA and what an honor that was. John, Chase and I were able to meet Ron Hemelgarn. He is the owner of Super Fitness and has sprint race cars. While we were talking he made me realize that I should do whatever I can to achieve my goals and not put them off for a later time and then later that evening while talking to my brother Don about my idea, he liked it and said that I should do it, So I decided to move forward with my goals and to do it to the very best of my ability. When I was being diagnosed with ALS my sister (Maryann)told me to never let the disease over take me and to fight it, she made me promise and I did just that at my brother's ganddaughter's 1st birthday. Before being diagnosed I didn't really know what ALS was and never thought of me ever having a life threatening, fatal disease. But it is what it is and I am refusing to give in. That is why I made the decision to take my motorized chair and ride it from Toledo to DC. Some people may think that I am doing it for attention and guess what I AM!!! I want people to know what ALS is and I want people to remember that CRAZY CHICK that has ALS and will let nothing stop her from raising awareness. This is why I have to do this, I need to do this for every person affected by this disease. It's not that I want to be a celebrity or attention for a stunt. If I can educate others on what ALS is, I have done my job. I say to many people that may not know who Lou Gerhig is, he is a man that had my disease (Robin Mower's disease) they may not know him but they know me and they will be able to understand what this disease does.
Without my family's love and support it would be easy to give up. I come from a huge family and I know I can achieve anything that I set my mind up to do. plus I am not one to give in... (maybe I could be a slight bit bullheaded) I call it determined.
My goal is to have every person affected with ALS, to leave it behind for good. Now I challenge each of you to go up to a person you don't know and ask if they know what ALS is and help me and others raise awareness because you can.