Saturday, March 26, 2011


Imagine yourself as being carefree and doing whatever you wanted to do and go whenever you wanted to go somewhere, then the unimaginable happens. You are stuck in a chair not able to do or go where and when you want to because you have a disease that takes away everything or so you think. Well that is where I was until I got over my pityparty feeling sorry for myself. Having ALS isn't a death sentence, having ALS has given me the second chance to live life without taking the simple things for granted and to appreciate living. I can't give hugs like you do and I can't feed or take care of myself the way I use too but that doesn't mean it's the end of the world. It just means I do things slower and different. About a year ago I was able to sing I never thought I was good until now. Now I have changed my opinion as I sit back and listen to what I had. Imagine being able to speak and one day you wake up finding you no longer have a voice. Imagine not being able to communicate and others guessing what your needs are. The simple things such as breathing and swallowing are not a simple thing. I ask you to imagine this because many people who have ALS go through this daily Including myself except that I still have a voice and I still breath on my own .and yet they want no sympathy
they just want a cure to be found so no one else has to suffer.

I consider myself to be one of the lucky ones, I have my family and friends to help me through this. Many others who have ALS have no one. I have been blessed in so many ways and I still continue to receive blessed gifts from many.
Recently my daughter's grandpa passed, I went to pay my respects and found myself doing something I have never been able to do except at my mom's funeral and that was me going up to the casket. I can honestly that the thought of dying or being forgotten scares me but what I am most afraid of is not being able to been their for my family needs. I know they are strong but still it's a fear.
Until that day comes I will continue to be strong and to help And give to others as much as I can and then push myself that extra mile just for good measure. Like I said earlier having ALS isn't a death sentence, it's a new way of living and appreciating what god has given me.
So now that I have depressed you I with my thoughts just know I am a very lucky and a very happy person wanting and willing to pay it forward with all my strength and might.

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